Posted on the Tubal Reversal Message Board by a potential patient of
Dr. Berger at Chapel Hill Tubal Reversal Center:
I believe I am a victim ot PTLS in forum New Message Board Members at Tubal Reversal Message Board ---------------------------------------------
Posted by Gialisa40 (Member # 8182) on May 29, 2005 09:58 AM :
I have had terrible PTLS symptoms that have only gotten worse. I was wondering does it matter how long you have had your tubal, can you still get it reversed? Will reversal help at any age? What if you are close to menopause? My doctor told me what he was doing couldn't be reversed, it was cut and burned. Is that true?
I appreciate any help or information anyone has to offer.
Thanks, Gialisa40
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Posted by Digger (Member # 7585) on May 29, 2005 11:00 AM :
The time length that you had your TL doesn't matter.My Dr told me mine couldn't be reversed either but Dr B DID reverse it.At times it the tube is too short or severely damaged it may not be reversed.Dr B will request your records from the TL to determine that and if you don't have access to those recors(which I didn't)he can do laproscopy to look before he does the TR.I wish you the best of luck!
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Posted by rkandlm (Member # 6776) on May 29, 2005 11:01 AM :
Gilalisa, My symptoms got worse and worse! It does not matter, from what I have heard, how long since your TL. Dr. B. can fix almost everything! Mine were cut and burned, and I still came out with 5.5 & 6 cm. I had my TR on 11-5-04, and I am now 22W 3D pregnan. After the TR, and before my BFP, all my symptoms went away. All I know for sure is how I went back to normal, and felt a ton better! Bonus.....I now get to be a mom again!YEA!
Hope this helps some, Lisa
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Posted by Rachel RN (Member # 1386) on May 29, 2005 12:36 PM :
Dear Gialisa, I'm sorry you have been having so much trouble with PTLS. Although most patients come to Dr. Berger for TR because they want more children, many women report either significant or total relief from PTLS symptoms following TR surgery. Many have reported reduction in cramping, bleeding, and number of days their periods last, as well as fewer mood swings and other problems. To my knowledge, there is not much data on this (maybe because so many doctors are still denying the existence of PTLS) but Dr. Berger is collecting these reports. Dr. Berger is able to repair the tubes in at least 95% of cases. Your age and length of time since TL are not factors in a successful repair (pregnancy rates, of course, ARE related to age). I suggest that you obtain a copy of the operative report from your TL procedure (from the surgeon who performed it, or the hospital where you had it done) and send it to Dr. Berger. He'll review it and a nurse will call you within a day or so to discuss everything. I hope to be taking care of you in the Recovery Room soon! Rachel Heller, RN
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Posted by tfaith (Member # 8133) on May 30, 2005 05:51 PM :
Gialisa,
You are not alone. I am a 44 year old woman with PTLS symptoms and broke down and cried when I found this site a week ago. No one believed me before. I had been told the only way I could find relief was to have a hysterectomy. My fear of only trading symptoms kept me from doing it. My reports have already been turned in and now I am waiting to have my FSH levels tested. As long as I am not on the verge of menopause I will be having a TR in the attempt to diminish my PTLS symptoms. I still have regualar cycles so feel confident Dr. B. can help me too. I already feel a heavy weight has been lifted, because now I have hope. You are younger than me and I am pressing on, and so can you. BTW - I had also been told that my tubes were burned but my report did not reflect that, so maybe your tubes weren't either.
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Posted by CL (Member # 6765) on May 31, 2005 11:12 PM :
Gialisa40, I can only tell you that my PTLS has gotten worse and in 9 days, I will be having my TR. I am looking foward to my first AF after that to see what happens. I am looking forward to having more energy and getting rid of the mood swings that have developed in the last month. The mood swings is what pushed my husband into getting my TR immediately. Of course, part of this happened because the good Lord helped us to sell our house to make all of this possible. All I can say, is that the day I found this site and discovered that I wasn't crazy and had a OB/GYN doc say that they call it PMS, not PTLS and walked out on me when I asked her morally and ethically didn't she feel obligated to tell her patients what could happen from a TL.
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Posted by taalah (Member # 8162) on May 31, 2005 11:20 PM :
I thought i was the only one having these symptoms and my gyno recommended me taking everything out and i am only 33 gosh i thought i was tripping out again but i suspected it was hormone related to my tl its like i morphed into a different woman will most of this go away when you have your tr and put your body back the way god intended it
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Posted by CL (Member # 6765) on June 01, 2005 01:03 AM :
taalah, I certainly hope so as I do not want to take birth control pills, prescription medication and have more test run to figure out how to deal with these symptoms. I guess in 9 days when I have the procedure and my body is put back together, I will find out. It certainly will be nice to have energy again instead of sitting around the house because that is all you can do. CL
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Posted by colette catalino (Member # 8184) on June 01, 2005 06:31 AM :
This is the first I've heard of PTLS. Since my TL 2 years ago and the return of my periods year ago I have experienced the worsest mood swings, abdominal pain, nausea and cramping not to mention feeling like I am pregnant every month from the abdominal bloating, breast tenderness, nausea and back cramps. After the third cycle I began to think I have excess scarring from the procedure or an artifact was left behind during the surgery. I want this craziness to end. How common is PTLS and does it continually get worse?? Confused and nutty....
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Posted by Gialisa40 (Member # 8182) on June 01, 2005 07:24 AM :
Yes Taalah,
I agree we should be the way God intended us to be. I kept waiting for my husband to have a vasectomy and he wouldn't, 6 kids later, I said I have to do something. Now with these symptoms I am sorry I did. For women we have a monthly cycle and our whole body undergoes changes constantly, we need our estrogen production. Men don't need to produce sperm, except when you want to conceive, which I think we have enough. My brother had a vasectomy and he had no negative symptoms. I just thought I would show the comparison of how much more we are affected by sterilization then men are.
Gialisa40
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Posted by Gialisa40 (Member # 8182) on June 01, 2005 07:29 AM :
Please CL let us know how you feel after.
Thanks so much for sharing! It is so good to know I am not alone.
Gialisa40
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Posted by mommakat (Member # 8204) on June 02, 2005 02:12 PM :
Hello everyone
I didn't know about ptls until I looked into this sight 3 years ago (wanting to get a reversal so my DH and I could have a baby together). I realized then that was exactly what I was experiancing. Not only did I have terrible mood swings (sometimes rageful)but I never knew when to expect my periods (typically 19-30+ days), which by the way were always very painful the first day. After my tr my cycles became very regular, I don't have the mood swings or even the pain anymore!!!
I had my tl Oct. 26th, 1994 after my youngest daughter was born and my tr on October 20th 2004. I have 3 children from my 1st marriage -ages 10, 12, & 14 and am remarried 1 1/2 years now with hopes of another bundle of joy soon.
-Kathleen
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Posted by tfaith (Member # 8133) on June 02, 2005 04:02 PM :
I wish I had found this site years ago, but am grateful for finding now.
Has anyone who was 40+ gone through the TR and found relief from PTLS? Ironically I found this site while researching pre-menopausal symptoms as my PMS keeps getting worse and I am approaching the age. But two things that have remained constant is that my AF's are still very regular and I still feel ovulation.
Thanks,
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Posted by taalah (Member # 8162) on June 02, 2005 11:11 PM :
congrads cl hope your tr goes well and wish you all the luck. i agree with some now let the men carry the procedures from here on because woman have enough to deal with already with everyday hormone problems.
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Posted by little j (Member # 7744) on June 03, 2005 07:04 PM :
Hellow girls,I'm 27 and I have 3 boys ages6,8,and 9 and I've been wanting to have a TR,How has this exprerience been for those who got it done?
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Posted by CL (Member # 6765) on June 05, 2005 12:14 PM :
Gialisa40, I will be glad to let you know how I am feeling.
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Posted by dephany (Member # 6570) on June 05, 2005 01:26 PM :
is ther anyone on line right now who i can talk to about there surgery send back a reply
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Posted by hopeann (Member # 7733) on June 06, 2005 01:10 PM :
Hey Ladies, I had my TR in January. Each month my cycle has been better. This month it was almost the same as before my TL. My period would be about 2 days with mild cramping, after the TL it would last for about 7 days with nausea and heavy cramping. I used to have a bad headache about a week before I was to start, but I believe my body is working this out because my headache is moving around during the month. I would believe it will deminish as well. I wish doctors would give people the information that ptls is possible. I am greatful to have the opportunity to fix my body and let it work as it is supposed to. Dr. Berger and his staff are the most professional and caring office I have met in any field of health care. Thank you Dr. Berger and Staff for all you do. Hope
